News
I would have argued the newborn screening result until my face turned blue. There was no way my baby had cystic fibrosis. My prenatal screening showed I was not a carrier of the CF gene. Even if my ...
On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
Dear Chairman Bjorkman and Members of the Committee on Labor and Commerce: On behalf of the people living with cystic fibrosis in Alaska, we write to express our support for SB 133, which makes ...
The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...
When I began my journey to earn my Doctor of Pharmacy degree, I knew the road ahead would be challenging. In fact, it was so challenging that I often sat there worrying and anxiously crying about ...
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...
The Cystic Fibrosis Foundation announced today that it has invested an additional $5 million in BiomX Inc. to support a Phase 2b clinical trial to test the efficacy of bacteriophage (phage) therapy in ...
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