Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.

Measures related to the body's muscle composition improved in SMA children on Spinraza, correlating with better motor ...

Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...

Meeting your new medical team is never easy, especially when you have a complex and rare disease like SMA, columnist Alyssa ...

The use of salbutamol may improve upper limb strength and aid breathing in young children with spinal muscular atrophy, an analysis found.

Earlier this month, I took a trip to England with my dad and my friend Anna — my first overseas adventure. I’m posting my photos on my Instagram account (you have to follow me to see them) and will be ...

For people with spinal muscular atrophy (SMA), these changes could make flying more manageable. But air travel may still feel like a major undertaking when you rely on a wheelchair. Kevan Chandler, ...

That was my prayer on May 23, 2025. I’d been up since 8 a.m. It was past 5 p.m., and I was exhausted from a pain management nerve ablation done that day. I was on my way home via a train station, ...