News

Sickle Cell Disease News6d
World Sickle Cell Day events include walks, vigils, building lights
Illuminating public buildings in red, candlelight vigils, and walks are among events planned for World Sickle Cell Day, June ...
Sickle Cell Disease News6d
Attending a hematology conference as a sickle cell patient is empowering
Columnist Mary Shaniqua shares the benefits of attending the European Hematology Association's 2025 Congress as a sickle cell patient.
Sickle Cell Disease News7d
This World Sickle Cell Day, I’m grateful for UK advocacy groups
In honor of this year's World Sickle Cell Day, columnist Dunstan Nicol-Wilson recognizes several organizations that are making a difference.
Sickle Cell Disease News11d
Sickle cell disease cell therapy named FDA orphan drug
BEAM-101, a genetically modified cell therapy for sickle cell, is designed to turn on HbF to counteract mutated adult ...
Sickle Cell Disease News12d
Silence of sickle cell in children doesn’t always indicate mild disease
Even if children with sickle cell disease appear asymptomatic, it's still crucial to provide proper care, says columnist.
Sickle Cell Disease News13d
I can’t always identify the causes of a sickle cell crisis, despite my efforts
For columnist Mary Shaniqua, who tracks her health closely, not being able to discern the causes of a sickle cell crisis is ...
sicklecellanemianews28d
High mortality from pneumococcal meningitis in children with SCD
This is despite vaccinations for SCD children against the pneumococcal bacteria that cause meningitis and other diseases. Per the researchers, this study demonstrated that, in most cases, meningitis ...
sicklecellanemianews1mon
PIONEER trial of pociredir still recruiting sickle cell disease patients
An ongoing, early-phase clinical trial of pociredir, an oral small molecule being developed by Fulcrum Therapeutics as a possible treatment for sickle cell disease (SCD), is still recruiting adult ...