Earlier this year, Teegan Olson was diagnosed with an MEF2C mutation, a genetic disorder so rare only about 350 people are known to have it in the world, and many of them are children.

Wakefield carer, Teegan, aged 19, has overcome many challenges in her young life, as at the age of 16 she wasn’t able to stay at home. She initially moved to a children’s home where she was ...