(KOIN) — A 5-year-old boy with a rare genetic disorder got an out-of-this world experience when characters from a galaxy far, far away gave him a proper Star Wars day sendoff at Portland ...

It is also for these reasons that Rare Disease Day, which takes place every February and is coordinated by EURORDIS, is so important. The #LightUpForRare 8 theme highlights the issues faced by ...

Oliver Timmis explores the problems associated with securing funding for rare disease research and questions ... Yet as you read in the quotes and AKU example I mentioned earlier, rare diseases ...

A new rare disease plan is being developed by Government ... People lose mobility, cognitive function and independence. Not overnight, but day by day. The longer treatment is delayed, the more ...

Farabursen is being developed as a treatment for autosomal dominant polycystic kidney disease (ADPKD). This rare disease leads to the development of cysts in organs, mainly the kidneys.

The singer has been dealing with a rare genetic condition called Charcot-Marie-Tooth disease. It is a chronic neuropathy condition that affects a person’s balance and ability to walk ...

Now, today on the occasion of Labour Day, you can boost the morale of the workers with some special motivational quotes and messages. Here we have brought some selected quotes, wishes, and ...

establishing it as a challenger to Travere Therapeutics in a rare kidney disease. New Jersey-based Amicus’ hunt for de-risked assets that could address a significant unmet medical need led it to ...

Markle, 43, didn’t caption the adorable snap. The day prior, news broke that the Duke of Sussex wouldn’t be granted publicly funded security when returning to his homeland. “I can’t see a ...

The singer has been dealing with a rare genetic condition called Charcot-Marie-Tooth disease. It is a chronic neuropathy condition that affects a person’s balance and ability to walk ...