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Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
I would have argued the newborn screening result until my face turned blue. There was no way my baby had cystic fibrosis. My prenatal screening was negative, and I believed it showed that my son was ...
On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...
Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities ...
Dear Chairman Bjorkman and Members of the Committee on Labor and Commerce: On behalf of the people living with cystic fibrosis in Alaska, we write to express our support for SB 133, which makes ...
The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...
When I began my journey to earn my Doctor of Pharmacy degree, I knew the road ahead would be challenging. In fact, it was so challenging that I often sat there worrying and anxiously crying about ...
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