On Thursday, KCCI introduced you to Barb Heenan, who was diagnosed with a rare autoimmune disease called scleroderma. She is set to finish the last two days of the ride.

Barb Heenan loaded 43 oxygen tanks into her team's RV at the start of RAGBRAI so she can complete the ride while battling a rare disease.

New 3D tissue model offers a breakthrough tool for understanding and treating scleroderma and other fibrotic diseases.

The 5th annual "Stepping Out to Cure Scleroderma" benefit 2.8 mile walk is set for July 10th in Portland beginning at 11:00 am at The Multnomah Art Center (7688 SW Capitol Hwy.).

A Valley mother and singer is finding her voice again after she received a double lung transplant at Dignity Health St.

Researchers from Tufts University School of Dental Medicine have developed lab-grown skin that replicates the complexity of scleroderma. Made from patient-derived cells, the 3D tissue model increases ...

Portia: Living with Scleroderma The auto-immune condition Scleroderma affects hundreds of thousands of men, women, and children, yet very few people know about the diagnosis.

Ingelheim, Germany, 29 June 2018 – Boehringer Ingelheim today reveals a new collection of unique, personal stories and portraits from family members supporting people living with scleroderma.

CONNECTICUT (WTNH) — On National Rare Disease Day, one woman living with Scleroderma is raising awareness. She encapsulated her journey in a new book called “Invisible, A Nurse Turned Patient… ...

Scleroderma is a chronic autoimmune disease of women. Over time, people living with scleroderma develop progressive and irreversible scarring. Scarring, called fibrosis, effects the lungs, heart ...

Barb Heenan gives a dispatch of RAGBRAI Day 1 to her Facebook followers. Heenan, who has limited systemic scleroderma, is riding RAGBRAI while wearing an oxygen tank.

Local people living with this disease have turned to the Oregon Chapter of the Scleroderma Foundation for nearly 30 years in its continuing efforts to provide support groups throughout the state ...