When my son was diagnosed with cystic fibrosis, I was taught everything I needed to know about CF…except how to navigate the anxiety he experiences. As he’s gotten older, I’ve struggled to know how to ...

“You describe it feels like you’re drowning, and I am handing you a life vest. But you’re reluctant or declining to take the life vest I am throwing at you, so it really is up to you.” This is the ...

Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease. 12 min read What Is Cystic Fibrosis? Cystic ...

Receiving a late diagnosis of cystic fibrosis meant I spent my childhood and young adulthood being told that how I was feeling — both physically and emotionally — was wrong, and that I was “young” and ...

Throughout my childhood, I was thin and underweight thanks to cystic fibrosis. When my mother, my sister, and I would go to the trails near our house to exercise, I hated running. I could barely make ...

With advancements in cystic fibrosis treatments, individuals with the condition are now living longer and healthier lives, often well into adulthood. This progress has opened the door for many to ...

Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...

The Michigan Chapter of the Cystic Fibrosis Foundation welcomes you! Our Chapter covers all of Michigan and Northwest Ohio, including Toledo, Perrysburg, Maumee, and Findlay areas. Volunteers are the ...

The Tennessee Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers East, Middle and Southeast Tennessee. Volunteers are the key to our success and the lifeblood of our ...

The CF Foundation has been closely monitoring the COVID-19 pandemic and how it may affect people with cystic fibrosis and their families. Resources are available to help inform and provide a sense of ...