News

For many years, cystic fibrosis took a toll on my mental health — long before I was diagnosed. But over time, I began to find meaning in small moments, slowly rebuilding after breaking down. It’s been ...
The digestive system includes all the organs involved in digesting the food you eat and absorbing the nutrients. This is also called the gastrointestinal (GI) system. Some of these organs make up the ...
The San Diego and Hawaii Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
Dear Chair McInnis, Chair Craven, and Members of the Committee on Finance, On behalf of the over 1100 people with cystic fibrosis in North Carolina we write to express our support for HB 67, which ...
When my friend Michelle and I started a volunteer group, we looked forward to giving back to the community with our free time. What we didn’t anticipate was how deeply we’d become involved in a cause ...
I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
I had no idea what cystic fibrosis was — or that I had it — until six months of pancreatitis led to a diagnosis.
The antibiotics used to treat nontuberculous mycobacteria made me choose between the risk of hearing loss versus the reward of better lung health.
BETHESDA, Md. — The Cystic Fibrosis Foundation recently agreed to provide up to $2 million to Nosis Bio to explore an alternative way to safely deliver gene therapies into the appropriate lung cells, ...
I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned.