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When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
I would have argued the newborn screening result until my face turned blue. There was no way my baby had cystic fibrosis. My prenatal screening showed I was not a carrier of the CF gene. Even if my ...
On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...
Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community. I never ...
The Cystic Fibrosis Foundation would like to thank New York Giants placekicker Josh Brown and Tommy Bahama for their efforts in supporting the search for a cure for cystic fibrosis. New York Giants ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
As I sat down at my new desk and tidied my wobbling stack of pencils, I thought I had it all figured out. My parents had just driven away with tears in their eyes, but I was doing just fine: dresses ...
Grief is just one of the many emotions we all experience in life that makes us human. It is not linear. Some days you may feel like the world is caving in around you, while other days the weight is ...
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era ...
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