A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
An ex-RAF nurse has said that the detection of her rare disease was all thanks to an accidental collision with her family's ...
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
Here, experts explain genetics in Alzheimer’s and dementia, including if it’s hereditary, how to lower your risk, and ...
Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.
The Oxford rare disease conference brought together experts and patients to raise awarenes of rare disease care.