Prince Robert, mitochondrial disease and Luxembourg

What is PolG? The rare genetic disease that ended a young prince's life
Prince Frederik of Luxembourg died from a genetic disease called PolG, but experts hope his passing could bring more awareness to the rare condition that impacted his life. Prince Frederik, 22, died from a mitochondrial disease known as PolG,
Prince Frederik of Luxembourg dies from rare disease
Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a lifelong battle with a rare genetic disorder known as POLG mitochondrial disease.
A Young Prince of Luxembourg Dies of a Rare Genetic Disease
Prince Frederik, 22, was a founder and the creative director of a foundation that raised awareness of POLG disorder.
Prince Frederik Death: What Is POLG Mitochondrial Disease?
Prince Frederik of Luxembourg died at the age of 22 due to a rare mitochondrial condition called POLG disease— Newsweek has rounded up what you need to know about the illness. The European royal died in Paris on March 1, one day after "rare disease day," according to his father Prince Robert of Luxembourg's public announcement.
‘Sunshine Genetics Act’ aims to advance care and research for rare diseases
With thousands of rare diseases affecting millions of families worldwide, one Tampa Bay lawmaker is taking action to position Florida as a national leader in genetic medicine.
POLG diseases: Rare genetic conditions that starve cells of energy and afflicted the late Prince of Luxembourg
POLG-related diseases disrupt the function of the mitochondria, or "powerhouses" of the cell — starving them of energy.
Prince Frederik of Luxembourg Speaks About Rare Genetic Condition in Resurfaced Video After Death at 22
Prince Frederik of Luxembourg, who died at 22, spoke about the rare genetic disorder he navigated in a video released by The PolG Foundation he founded.
Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
American Council on Science and Health1d
“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Woman diagnosed with rare disease after 'excited' dog accident
An ex-RAF nurse has said that the detection of her rare disease was all thanks to an accidental collision with her family's ...
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
What Is Hantavirus? All About the Rare Disease Spread by Rats That Led to Betsy Hackman's Death
Gene Hackman’s wife Betsy died from hantavirus pulmonary syndrome, a flu-like virus linked to rodent droppings. Here’s what ...
The Truth About Alzheimer’s Disease and Genes
Here, experts explain genetics in Alzheimer’s and dementia, including if it’s hereditary, how to lower your risk, and ...
The Oxford Student4h
“Connecting the dots”: Insights from Oxford’s First Student Rare Disease Conference
The Oxford rare disease conference brought together experts and patients to raise awarenes of rare disease care.