“I hope participants met someone new with a common interest in highlighting rare diseases,” said Alico, the genetic counseling director. “Growing the network of health care professionals with ...

Zebra advocacy: 3 considerations for helping rare disease patients receive the best care possible Many patients don’t know where to start when it comes to advocating for themselves and demanding ...

The Celtics played the Cleveland Cavaliers in a home game Friday. With the Celtics up 87 to 70 in the third quarter, a stoppage in play allowed Takeda to mark Rare Disease Day.

Rare Disease Day 2025 triggered a flurry of pharma marketing activity, with Arrowhead Pharmaceuticals, Zevra Therapeutics and a clutch of other drug developers publishing materials to mark the Feb ...

136 people are off the streets and out of a homeless situation. That’s just one of many milestones that were celebrated at Mercy Cross Center’s one-year anniversary on Wednesday.

Rare Disease Day, recognized globally on the last day of February since 2008, is intended to raise awareness to the approximately 7,000 known rare diseases affecting 300 million people worldwide.

Rare Disease Day 2025 at FSU provided a forum for university and state leaders to lay out the future plans for IPRD. The event was also a platform to share the work already underway at the ...

Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In Roanoke, the Wells Fargo Tower will be illuminated in pink, green, purple ...

Tracking Data Many rare disease symptoms are nebulous which is why misdiagnoses are extremely common and the road to diagnosis is often very long. In fact, according to a study conducted by ...

OCEAN SPRINGS, Miss. (WLOX) - Despite the weather, runners put on their best costumes and running shoes for the 8th annual Zebra Run. The 5K and fun run raise funds to further research on multiple ...

OCEAN SPRINGS, Miss. (WLOX) - Despite the weather, runners put on their best costumes and running shoes for the 8th annual Zebra Run. The 5K and fun run raise funds to further research on multiple ...