Acute hepatic porphyria (AHP) happens when your body doesn't make a substance called heme the way it should. Heme, a part of red blood cells, does a lot of vital things, like carry oxygen ...

If you have acute hepatic porphyria (AHP), it’s important to get the right diagnosis early. Prompt care can help lessen your symptoms and keep more problems away. Signs and symptoms of AHP are ...

It tells the tale of class and marriage, while also exploring the tormenting illness of King George III, which at least some experts believe to be porphyria. That's right: while "Queen Charlotte ...

Alnylam Pharmaceuticals has put its dancing shoes on to raise awareness of the experience of living with acute hepatic ...

Porphyria cutanea tarda (PCT) belongs to group of disorders named the porphyrias. A porphyria is characterized by the abnormal metabolism of the blood pigment hemoglobin. In porphyria, cells fail ...

A special film to block UV light covers her parents’ car windows. Adeline was born with a severe type of porphyria — a group of blood disorders that impact the skin or nervous system ...

There are different types of porphyrias based on the specific enzyme affected, but acute intermittent porphyria (AIP) is the most common and severe type. Read on to find out more about AIP and how ...

BETHESDA, Md., May 17, 2024 /PRNewswire/ -- United Porphyrias Association (UPA) is proud to announce May 18 as Global Porphyria Day. Global Porphyria Day is intended to create awareness that ...

Both ended up in the care of hematologists who diagnosed their conditions as porphyria cutanea tarda (PCT) and hemochromatosis, respectively. A pair of hematologists discussed the treatment of ...

She told doctors at that hospital that she had a history of acute intermittent porphyria and that her symptoms matched previous flares of the condition. Porphyrias are rare disorders caused by ...